2nd Australasian FASD Conference November 2018

Our Science, Our Stories: 2nd Australasian FASD Conference
Perth, Australia  21-22 Nov 2018
Pre-conference workshops 20 Nov 2018

We encourage you to attend this important conference, happening at a critical time of FASD action in both Australia and New Zealand.

Our Science, Our Stories, will feature our own Claire Gyde, inspirational writer and speaker and Chairperson of FASD-CAN, along with Canada’s Dr Svetlana Popova who has led groundbreaking research to ascertain FASD rates worldwide and in Canada.

Registrations and Call for Abstract submissions is open. The deadline for receipt of submissions is Friday 11th May.

For further information about the conference click here

FASD Hub Australia

A new online resource, FASD Hub Australia, invites you to link to their website www.fasdhub.org.au .

The FASD Hub was developed with funding from the Australian Government to provide a one-stop shop for information, tools and resources that are current and evidence-based about FASD in Australia. It was developed and now maintained by the University of Sydney and the Telethon Kids Institute.

The website provides information for health professionals, parents and carers, other professionals (including for justice, education, child protection and disability services), researchers and policy makers.

Jeff Noble, Founder and CEO of Noble Initiatives

Jeff Noble came to NZ November 2018!

Jeff Noble is the Founder and CEO of Noble Initiatives, an international organisation that provides hope and education to people caring for someone living with Fetal Alcohol Spectrum Disorder (FASD). He is a dynamic and energetic speaker who describes himself as “a helper, a leader and an innovator”. FASD- CAN invited Jeff to New Zealand to share some of his experience and insights with caregivers of FASD individuals and professionals who interact with them. FASD-CAN acknowledges the Ministry of Health for their financial support which enabled Jeff to come to Aotearoa. Support for caregivers is part of the Minstry’s FASD Strategic Action plan.

2 workshops were held in Auckland & Christchurch in November. Attendees were a mix of parents/ caregivers and professionals representing various professional and service organisations. Both events had full capacity totalling 276 people.

Jeff captured the participants with his engaging, conversational style and humour. He has lived the life and walked the walk, and shared that he has a family member living with FASD.

He said our young people need a stable, safe home, and that normal parenting strategies are a disaster. Parents/caregivers can follow 4 things to maximise success :

  1. Training, training, training – it is a complicated and often invisible disability that needs strategies & awareness.
  2. Respite care – it is a 24/7 job and parents/carers need breaks.
  3. Grief and loss work is needed – parents/carers are constantly grieving.
  4. Coaching and support. Don’t feel judged. Cope not cure.

Have a look at Jeff’s website and join up for his newsletter. You will be sent a free e-book copy of his book “Making Sense of the Madness” – a great resource.

Judge Tony Fitzgerald

Introducing our Patron: Judge Tony FitzGerald

It is with great pleasure that we announce the appointment of Judge Tony FitzGerald as Patron of FASD-CAN.  We are honoured to have him join us.

Jakob receiving an award

The FASD Action Plan

The really big news of the year so far is the launch of the FASD Action Plan which occurred on the 16th of August. We were fortunate to have a good representation of FASD-CAN members attend Parliament – a significant event for us all.

FASD Conference in Wellington

Parent/Caregiver Workshop

On a very wet Wellington day 30 parents and caregivers came together for our second parent/caregiver workshop co-hosted by Alcohol Healthwatch with funding assistance from Health Promotion Agency.