This report was developed after extensive engagement in 2024 with people across Aotearoa affected by Fetal Alcohol Spectrum Disorder (FASD) — individuals with FASD, their parents, caregivers, whānau, and the professionals who support them. Their insights and experiences form the foundation of this document, which was prepared to inform government work on a revitalised FASD Action Plan.

We share it here with our members and community because it represents a collective voice. The perspectives and recommendations gathered remain highly relevant, highlighting both the challenges and the solutions identified by those living and working with FASD every day.

This report is a record of lived experience of FASD, and a desperate call for continued advocacy and action. FASD-CAN thanks all those who contributed for their their honesty and bravery, their time and knowledge. Your participation in this project will continue to shape the path toward better understanding, recognition and support for people with FASD and their whānau.

This report is not an easy read, but it is a clear and sobering snapshot of what life is like when FASD remains unsupported – and how much better it could be if its recommendations could be put in place. 

Please click here to read and / or download the report.

Please click here to read the 2025-2028 FASD Action Plan.