Ko ngā pūrākau a te hunga FASD | Stories from those with FASD

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Ko ngā whakamāramatanga mō te hunga FASD | Information for Individuals with FASD

Leaving school, tertiary education and work

... or going to university – or doing an apprenticeship! The thought of leaving school and heading out into the world to university or work can be exciting – but also a little scary or overwhelming. 

Hopefully your school may have been helping you think about transitioning from school to a university or towards getting a job for a while now. Your parents or caregivers will be keen to support you too, and guess what – even the government of NZ is ready to help you find work! 

The good news is that with the right support it is perfectly possible for you to achieve your goals. And there are plenty of very helpful people out there who know it's going to be a bit harder for you to move towards your goals, and who are keen to help you make it work.

• Below is our list of Universities and Polytechnics around Aotearoa – we've made it easy for you by finding the disability support web-page and email for each of those we have listed.  

Click here to go to our list of Transition Programmes around the motu which can help you transition from school into work.

 


Tertiary Study 

If you're transitioning into tertiary education, all universities and other tertiary institutions in NZ have whole departments to look after students who may need learning support. It's now a legal requirement – make use of them as much as possible!

As a general guide, universities are more academic and polytechs learning programmes are a little more hands-on.


Our list of Universities is below
.

Click here to go to our list of Polytechs.

 


Universities


Auckland University Student Disability Services

Email: [email protected]

AUT Auckland University of Technology Disability Support Services

Email: [email protected]

Massey University Disability services

Email: [email protected] (same for all campuses)

Phone Auckland Campus: 09 213 6203

Phone Palmerston North Campus: 06 951 6171

Phone Wellington Campus: 04 979 3192 or 04 979 3193

Victoria University of Wellington Disability Services

Email: [email protected] 

University of Canterbury Disability Services

Email: [email protected]

University of Otago Disability support

Email: [email protected]



Polytechs

ARA – Christchurch: Disability Support Services

Email: [email protected]

EIT – Eastern Institute of Technology Disability Support Services

Email: [email protected]

• NMIT - Nelson Marlborough Institute of Technology Disability Support Services

Email: [email protected]

MIT – Manukau Institute of Technology Disability Support Services

Email: [email protected]

The Open Polytechnic (online learning) disability and access services

Email: [email protected]

Otago Polytechnic Disability Support Services

Email: [email protected]

Primary ITO – agriculture and horticulture Disability Support Services

Email: [email protected]

Service IQ – service industry training Disability Support Services

Email: [email protected] 

SIT  – Southern Institute of Technology Disability Support Services

Email – Invercargill / Queenstown / Gore: [email protected] 

Email – Christchurch: [email protected] 

Email - Telford: [email protected] 

TPP – Tai Poutini Polytechnic (West Coast) Disability Support Services

Email: [email protected] 

Toi Ohomai – Waikato and Bay of Plenty Disability Support Services

Email: [email protected]

Unitec Disability Support Services – Auckland

Email: [email protected]

UCOL – Universal College of Learning, Manawatu/Whanganui region Disability Support Services

UCOL Te Pūkenga Manawatū

Email: [email protected]

UCOL Te Pūkenga Whanganui
Email: [email protected]

UCOL Te Pūkenga Wairarapa
Email: [email protected]

WINTEC – Waikato Institute of Technology Disability Support Services

Email: [email protected]

WITT – Western Institute of Technology at Taranaki (New Plymouth)

Email: [email protected]

Whitireia and Weltec – Porirua and Petone

Email: [email protected].

 


Finding a job – the right job for you

Around New Zealand there are some great Transition Programmes – these are all about helping you to move into employment, community services or other activities. They'll work with you, your family/whānau and your school to make the transition to adult life as easy as possible. Your planning will involve working through setting goals and developing skills and experiences to lead a purposeful and productive life after school. If you're already working, but want a different job, they can help with that, too.

There are some listed below, but there will be others in your area. 

National offices

Ministry of Social Development

There is general information on finding work, as well as self-development programmes, on the MSD page here.

If you have a disability or health condition (including a mental health condition or neurodiversity such as FASD), and you want to work, you can apply to join one of the MSD's 'Mainstream' programmes. They can help support you towards getting a long-term job. 

Mainstream programme


Workbridge – all over NZ

Workbridge has centres all over Aotearoa NZ – they work with you to figure out what kind of job you want and how to focus on your skills, not your disabilities.

Workbridge | Building a bridge over employment barriers


Emerge Aotearoa

This group have offices around the country and offer all kinds of helpful services including help with employment. 

Click here for more info.


CCS Disability Action

Also with offices around the motu, CCS Disability action can help with all kinds of things including finding a job and transitioning. Look for an office in your area.

Click here for more info.

APM - national offices

APM's Work Assist Health programme will help assess you for work, find a job and liaise with employers on your behalf. 

Employment Services for NZ Job Seekers - Let Us Help You Find a Job | APM NZ

 


Regional offices


Spectrum Care – Auckland and Wellington

Spectrum Care is based in Auckland with a branch in Wellington and can help with all kinds of respite care / holiday programms as well as transitions into work and housing.

Transition Support from school to work - Spectrum Care

Kia Roha / Your Way - Kirikiriroa / Hamilton

Transition Programme - from school to adult life.

Click here for more info.


Enrich Services – Waikato, Bay of Plenty and King Country – based in Te Awamutu

Supporting teens to find work.

Click here for more info.


Catapult Services - Canterbury

Catapult’s vision is for all people to have the opportunity to participate in paid employment, including those who live with a disability or health issue. They support employers, too. 

Click here for more info.

 

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Facebook Group for people with FASD – join us now!

Did you know you have your very own Facebook page where you can connect with others in Aotearoa who have FASD? It can be really helpful to connect with others who know exactly what life is like for you, and it's a great way to make new friends who 'get it'. 

Click here to find out more...

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Me and my FASD

Based in the UK, this website is written with advice from adults and young people who have FASD, along with a whole team of whānau and experts. It's full of ideas to help you understand and own your FASD diagnosis – and your uniqueness.

Check it out here – and don't forget to watch some of the YouTube videos...

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Anxiety Helpline in NZ

If you have have felt worried or anxious, you'll know it can be a horrible experience. Did you know that there's a 24 hour, seven days a week helpline available that you can call? It's completely free and confidential. 

If you need immediate help call 0800 269 4389 (0800 ANXIETY) or check out their website for some tips and tools on how to cope with feeling anxious. (Please note that calls between midnight and 8am are for emergency calls only.)

Click here to go to the website

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Te Tiaki Kare-ā-roto Managing Emotions

If you have FASD, it can really help to understand your feelings and emotions – but this can be hard. You may first need some ways to figure out WHAT you're feeling.

Below you'll find some information about how to identity and work with your emotions – and how to then change the outcome!

1. Notice and identify your emotions

To be able to work with strong emotions, you must first have a way to recognise exactly what you are feeling. That feeling can then be named and 'rules' for appropriate reaction to that feeling can be made. 

  • The first step is noticing that you are starting to feel stressed – the earlier you can realise that you may be heading towards an emotional blowup, the easier it can be to stop it in its tracks.

  • Stop and think about what you're feeling; for example, a fast-beating heart, sweaty hands, hot face. Make a connection with those physical feelings to the meltdown so you can try and remember what feelings are connected to which behaviours.

  • Always name emotions very clearly. Get help from a family member or friend if you need it! With teens and adults, name the emotion first and then follow with the words your friends might use (say 'angry' or 'pissed off').

  • To clarify your emotions, try using an outline drawing of a person, make copies of it and keep them handy - one person for each different page / emotion. Decide on some simple colour codes e.g. a red head for anger, blue for sad, yellow for happy, and grey for blank. You could draw faces on them too – like emojis!

    Colour the outline in with the colour of your feelings – this can give you a quick and immediate idea of the state of your emotional health. This might help, especially when you are not able to describe your feelings.

Here are some outlines you can use to colour in, and a 'feelings chart' you can print out. Click on the images below to download and print – you can print multiple copies. You could make a booklet in a file and keep your feelings pictures in there. 

                       


2. Express your feelings – the right way

If you have identified that you are:

  • Stressed and may be about to have a meltdown, use 'calm down' techniques. Leave the situation, take yourself away to a quiet place or outside in nature, do some breathing techniques, maybe lie down and listen to music.

  • Tired – lie down and rest, listen to some music or a story.

  • Frustrated – have a list of physical activities you can do – keep it handy on the fridge or in your room.

  • Angry – express it physically in an acceptable and safe way – punch a cushion or rip up some newspaper!

  • Sad – talk to a family member or friend about how you feel – a hug can make everyone feel better.

REMEMBER: the first thing to do is NOTICE how you are feeling, then STOP AND THINK how to deal with those feelings!

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Te whakahaere pūtea Money Management

How often do you run out of money for kai?  How often do you seem to owe money to people, and not be able to pay them back? Are you unable to pay your bills? If you find managing your money difficult, you are not alone.

It is a relatively common problem for people with FASD, and it is all to do with the way your brain works. However, there are things you can do to manage your money better.

Why it can be hard to make your money work well for you

• Although you can touch money and hold it in your hand, the value of it and the worth of items are ideas that can be hard to understand! You're not alone – it's a common problem for many neurodiverse people.

• As an FASD individual it's easy to ‘live in the moment’ – you may not always think about past mistakes or future consequences of your actions, because these ideas can be hard to think about, too.

• If you have memory problems, it's hard to remember that a certain amount of money might need to last a certain amount of time – if you have money coming in to your account only once a month, it could be a problem if you spend it all in the first week!

• Buying something quickly without thinking about more important things you might need (like food!) is common – but try to avoid it! Before you buy something, try and make it a habit to stop and think: do I really need this right now?

• Sadly people with FASD or other neurodiversities can be targeted by people who realise that they can talk you into using your money for them – and if you don't realise that, they might end up taking your money from you.

Strategies to use your money wisely

  • Practice shopping with a parent or friend at the supermarket – comparing prices, looking for things that are on sale, keeping track of your the total and going through the checkout.

  • Have an allowance each day/week/month that is broken up into smaller payments for certain things.

  • Plan out exactly where the money should go, write it down, and check in with a parent or caregiver if unsure.

  • Practise using money at home to match sums of money with the value of clothing, groceries, etc.

  • If you're a bit older, get help on learning to budget and practice planning for monthly bills to help remember about time and money concepts.

  • Get a person you trust to help keep track of your expenses, when you owe money, and what you spend your money on.

  • It can be great to get help setting up automatic payments for any payments that need to happen every month such as rent if you are living independently. 
  • Remember to ask a parent or caregiver before selling or buying things to people who might not have your best interests to avoid losing money and/or possessions.

The 'Stand Tall' Money App

The IHC in Aotearoa has developed an app which is a fun way for neurodivergent people to learn how to use your money wisely. It started out as a board game, then an online game, and is now a downloadable app. The Stand Tall money app is transforming the lives of many young people with intellectual challenges, and in April 2024 was nominated as one of the Hi-Tech Awards Finalists as one of the best new apps that help change lives. 

Like many games, you start by creating an avatar (a digital version of yourself) and then learn easy ways to use your money, including budgeting for essentials, saving and figuring how much you can spend on fun stuff each month! 

Click here to find out more about the Stand Tall app on the website – you'll find links to download the app here, too.

 

 

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Caregiver and Whānau Support

If you have an individual with FASD in your whānau, you'll find a wealth of information, education, tips, strategies and real life stories here.

 

Learn more

Understanding FASD

It's important and empowering to find out as much as possible about how FASD can affect people. Click through to our 'Understanding FASD' page to skill up.

 

Learn more