Before you even get into the legal specifics, we recommend you start by developing a shared vision for the FASD individual’s adult life, setting out simply and clearly the ideal kind of a life that they would like to see in their future. This should reflect their personal values, aspirations, and desired lifestyle.
Remember that you know your FASD person best in terms of their strengths and challenges. So when developing that shared vision, be realistic, but focus on their strengths, interests and potential for growth.
Whatever vision you develop for your FASD person, they must be in the placed in the centre of the planning and be involved in developing this vision about their future life.
Start by asking your FASD person who they want involved in developing this vision for their life. It is recommended you involve trusted people who are close to them, who have shown an interest in being in their life long-term, and have some empathy and understanding of FASD (if this is possible) – see 'Circles of Support' under this tab.
Thinking longer-term, try and involve people who can help them with any future planning because life situations and goals, even the vision, is likely to change over time. Life is never static!
A vision for a disabled or neurodiverse person is particularly important because it can help them achieve their hopes and dreams, and live their ideal life. It also helps you know what you are trying to achieve with any legal arrangement(s) you might put in place, and it can potentially help you identify trusted people who may be prepared to fulfil legal roles (e.g. Welfare Guardian) that your loved-one may need at some stage in their life.
Clarifies thoughts
Putting a vision on paper can help whānau and families clarify their ideas and direction.
Guides decision-making
A vision plan can help people evaluate choices and decide what will bring them closer to their desired outcomes.
Communicates needs
A vision plan can help people communicate their needs to others, and help enlist support.
Enhances self-determination
A vision plan can also help people feel in control of their lives, and reduce the possibility of a life designed by others.
Recognises rights
A vision plan can help people understand that disabled people have the same rights to an ordinary life as everyone else.
Expands opportunities
A vision plan can help people enjoy a broader range of opportunities.
So what do you need to think about when working together to develop a shared vision? Key aspects of vison development, particularly for people with disabilities, are:
Person-centred approach
Prioritising the individual's desires, needs, and goals, rather than imposing a generic plan.
Flexibility
Allowing for adjustments based on changing health conditions or life circumstances.
Involve the individual
Ensure the person with a disability is actively involved in the visioning and planning process and has a voice in decision-making.
Regular review and adjustments
Regularly assessing the vision and life plan and making necessary modifications as needed.
Respect individual capabilities
Acknowledging limitations while focusing on strengths and potential for growth.
