Since 2017, the Canadian FASD organisation CanFASD have been publishing a resource focused on respectful ways of writing and talking about FASD – the Common Messaging Guide.

In Aotearoa, we use it too, and we’re grateful to CanFASD for this.

The guide is reviewed and updated every year with new research and conversations that emerge in the FASD community. Individuals with lived experience of FASD have been increasingly involved in providing their feedback on the topics covered and language used to describe issues related to FASD.

An important point to consider when using the guide is that a ‘one-size-fits-all’ approach to language and messaging does not always apply. The suggestions provided in the guide are intended to be inclusive and respectful for all individuals with FASD and their whānau.

However, to acknowledge the diversity and uniqueness of each person with FASD, it’s recommended to consult at an individual level to ensure that language choices are reflective and respectful of each person’s experience.

The 2026 edition provides updated guidance on: 

• Using respectful, strength-based, and person-centred language when discussing FASD. 
• Sharing accurate information about prevalence, outcomes, prevention, and supports. 
• Avoiding stigma, blame, and harmful narratives. 
• Incorporating the perspectives and experiences of people with FASD and their families. 
• Understanding emerging areas of research and evolving conversations in the FASD community.
  

CanFASD FASD Common Messaging Guide 2026