Since 2017, the Canadian FASD organisation CanFASD have been publishing a resource focused on respectful ways of writing and talking about FASD – the Common Messaging Guide. In Aotearoa, we use it too, and we’re grateful to CanFASD for this.

The guide is reviewed and updated every year with new research and conversations that emerge in the FASD community. Individuals with lived experience of FASD have been increasingly involved in providing their feedback on the topics covered and language used to describe issues related to FASD.

An important point to consider when using the guide is that a ‘one-size-fits-all’ approach to language and messaging does not always apply. The suggestions provided in the guide are intended to be inclusive and respectful for all individuals with FASD and their whānau.

However, to acknowledge the diversity and uniqueness of each person with FASD, it’s recommended to consult at an individual level to ensure that language choices are reflective and respectful of each person’s experience.

Highlights from the 2025 update include:  

• A shift in prevention messaging to focus on alcohol use during pregnancy, not the prevention of the disability.  
• Updated terminology to reflect that FASD is “one of the most common” neurodevelopmental disabilities.  
• A move away from outdated terms like “leading cause,” emphasising FASD as a disability, not a cause.  
• Revised language around legal system involvement, replacing “criminal justice” with “criminal legal involvement.”  
• A new section on breastfeeding and FASD.  
• Clarifications around life expectancy messaging to avoid stigma and feelings of hopelessness. 

CanFASD FASD Common Messaging Guide 2025