There are many online discussions of the value of diagnosis from those with lived experience of it.
Here are a few we think highlight some of the important issues.
"Patima and her mother, Rachel, share their challenges getting a diagnosis of a fetal alcohol spectrum disorder (FASD) for Patima due to lack of visible symptoms and medical history. They highlight the importance of recognizing FASDs early and adapting supports accordingly. Patima shares her struggle with understanding her behaviors and emotions before being diagnosed, emphasizing the relief and clarity that came with a diagnosis."
Click here to watch on YouTube.
"Patti Kasper engages in a heartfelt panel discussion with returning guests Antonia Rathbun Lindsay and R.J. Formanek. Together, they explore the profound impact of receiving an FASD diagnosis on one's identity and sense of self. Both R.J. and Patti share their personal journeys, reflecting on how their diagnoses have shaped their understanding of disability and self-acceptance. The conversation delves into the nuances of invisible disabilities, the importance of community support, and the journey towards self-advocacy. Listeners will find solace in the shared experiences of navigating societal stigma, the quest for understanding, and the beauty of embracing one's uniqueness. This episode emphasizes the power of storytelling and connection, encouraging others to reflect on their own identities and experiences with FASD."
Click here to watch on YouTube.
This video features Reinier deSmit talking about his own diagnosis.
This video features global FASD advocate Myles Himmelreich.
