Many parents wonder about the value of getting a diagnosis and averse to their child being 'labelled'. However, understanding the cause of challenges can be transformational for both the person with FASD and their whānau.
For tamariki and whānau – it can be helpful to understand that difficulties are brain-based, and not the result of bad parenting or naughtiness. For the person with FASD it can be liberating to find out that their difficulties are brain-based and are not their fault; it helps them make sense of what has happened in their life. It can also contribute to better understanding of the risks of alcohol in pregnancy and help break the intergenerational cycle of FASD.
For schools and communities – diagnosis is helpful in gaining an understanding of how FASD impacts a child’s learning. More specifically, it means educators can design and implement individual educational interventions which can contribute to lifelong positive outcomes; in communities it raises awareness around alcohol in pregnancy and the need for understanding and support for neurodiversity.
When a diagnosis is made, a report is provided to explain the findings and describe the areas of strengths and challenges so caregivers, whānau, educators and others working with the child are aware where the support and scaffolding is required. The explanation to the child can be guided by the clinician – how and when will depend on the developmental level and their current situation.
A diagnosis of Intellectual Disability (ID - an IQ of less than 70) as part of the overall FASD diagnosis will enable a referral to a Needs Assessment Service Co-ordination organisation (NASC), which may be able to provide DSS funding. Currently, people with FASD are unable to access DSS funding unless they have a proven ID.
