If you would like to get in touch with your local MPs to ask them to raise awareness of FASD and the need for Government action, we’re making it as easy as possible for you, with info on how to contact your MP/s, and an email you can use to get you started.
Please consider passing this on to friends and family and ask them to do the same!
First, find your local MP/s:
• If you’re not sure of who the MPs are in your area, click here to go to a map of NZ electorates. Click on your area of the map, and a list of the MPs for the area will pop up. Don't feel you have to stick to any one political party!
• Decide who you want to write to, then find your MP’s email address here: https://www.parliament.nz/en/mps-and-electorates/members-of-parliament/
• Click on their name and their email info will come up (bottom left of screen).
Next, write your email based on our template below:
• Feel free to use as much or as little as you like, but please clarify where possible what YOUR personal experience is with FASD in the second paragraph.
• Cut and paste the template below into your email to begin, then edit to your liking and hit send when you're ready to go!
Dear [MP’s name]
I am a constituent of your electorate and I’m writing to let you know about Fetal Alcohol Spectrum Disorder (FASD). You may not realise it, but there are people in your electorate, who are living with FASD and need your help.
FASD is a lifelong neurodisability caused by exposure to alcohol while in the womb. I am [choose one option] the caregiver of / a whānau member of / a professional who works with whānau living with FASD / a person living with FASD, and I’m asking for your support.
FASD is estimated to affect to 3-5% of babies born currently in Aotearoa New Zealand. That’s around eight babies born every day. It is more common than Autism Spectrum Disorder, Down syndrome and cerebral palsy combined and as such, it is by far the greatest contributor to neurodisability in Aotearoa.
Tamariki and rangatahi affected by FASD experience physical, behavioural and learning difficulties that affect their interactions within education, health and justice settings throughout their lives. Crucially, FASD is still not recognised as a disability eligible for Disability Support Services (DSS), despite its lifelong impact, unless the individual has a proven intellectual disability.
Less than 20% of those with FASD have an IQ less than 70, but major issues with memory, executive function and behavioural issues means that without support, life can be extremely challenging for them and their whānau, and can also have an enormous impact on our society.
Lack of Government action
The Government has largely failed to implement its FASD Action Plan 2016-2019 in terms of its commitment to provide support for those affected by the disorder.
• In September 2021, the Disability Rights Commissioner Paula Tesoriero and Children’s Commissioner Judge Andrew Becroft identified the lack of DSS for those with FASD as a serious human rights issue in their report to the Prime Minister.
• In February 2024, a Massey University study found that harm to others (HTO) through misuse of alcohol showed FASD was the worst offender, far outstripping alcohol-fuelled violence and traffic crashes.
• In March 2024 the Ministry of Health published the results of a study into the costs of alcohol harm they commissioned, which found that of the $9.1 billion alcohol is estimated to cost Aotearoa annually, over half - $4.8 billion – is due to FASD.
We think you'll agree that these numbers cannot be ignored.
Future investment in FASD
On 26 April 2024, Health Minister Dr Shane Reti announced five ways this government would be investing in FASD – but none included DSS funding. This is what our whānau need NOW.
As well as providing DSS for those with FASD we must:
Will you raise awareness on behalf of this large and vulnerable group in your constituency with your colleagues? Will you advocate for us by asking the Te Whatu Ora how FASD is going to be supported within Whaikaha, the Ministry for Disabled People? Will you ask the Government exactly how they plan to revitalise the FASD Action Plan? Those affected by FASD urgently need your help.
You can find out more on the FASD-CAN website here.
Ngā mihi
[your name]
